I’ve been saying since coming back in January that writing for Baseball Prospectus was like falling in love again. I never really knew how much.
The reason I say this is this post has nothing to do with baseball, business or any matters, that in some ways, are really very small. BP is allowing me to talk autism advocacy on International Autism Awareness Day.
Now in the fourth year, I have reached out and challenged people to promote autism awareness. The likes of Stan Kasten, Peter Gammons, Chuck Armstrong, Sean Forman, and as a corporate endorser, Prospectus Entertainment Ventures, have all joined the cause (see all that have lent their name). News just released by the CBC highlight the urgency: 1 in 88 children will now be diagnosed somewhere on the Autism Spectrum Disorder (ASD) scale.
But, it has really touched home for me this year. That is because my son Travis, a “classic” autistic that is low functioning, has come into needs my wife and I did not expect and have had to start a fundraiser for his medical needs. A PayPal link to donate is within this article, A Father and Autism: The Cost of Autism. As I write:
But, even in our best efforts to try and understand and prepare for what may come forth from Travis as a “classic” autistic – one lower on the scale – it can be surprising. The cost of autism was not something we thought would impact us so soon.
The cost of autism is staggering, and this is just everyday life costs. We have yet to get Travis fully potty trained. Cost? As much as $60 every week.
It goes further. While it’s not uncommon for kids to be anxious about going to the dentist, for Travis, it’s a full-blown medical procedure. You can’t rationalize with him to get through getting the cavities filed (a side-effect of the autism is a diet that is almost all starches – he will not eat much of anything else, which increases the chances for cavities). Getting a drill in his mouth is an impossibility. So, to do so, we will go to a special dentist, and try sedation. Cost not covered by insurance? Between $500-$1,000. If that doesn’t work, we will have to have him go to the hospital where he will be put under complete sedation, and monitored by an anesthesiologist, just to allow the dentist to do his work. Cost? Thousands (with an inability to shoot X-rays, he may require more extensive work). And, this doesn’t include his “night terrors” which don’t always happen at night and will likely require more attention. The reason for these moments are likely a side-effect of being over stimulated by way of the autism disorder.
We have already seen donations come in that will help. This is one story. And, there are many, many of us with one just the same. Even with health care, a procedure such as what Travis will need is not covered. Insurance companies see his procedure as “elective”. For one that has ever had to put their child completely under with anesthesia, it is not something they joyfully elect to do.
My sincere thanks to that have already donated, those that may, and especially to my family here at Baseball Prospectus for allowing me the chance to run this post.
Thank you for reading
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I wish you well in all your efforts and keep the faith.
Good luck, Maury. I hope things get a little better over time.
You know why there's more diagnoses of autism? More research, and more children fit the description for it. Kids who used to just be called "a little off" or "misbehaving" now have a proper diagnosis.